LUPUS WARRIORS,
WE SEE YOU!
SAPHNELO is committed to the lupus community and Lupus Warriors everywhere. Explore recent events to see what the community has been up to, and read the advice of others living with lupus who share what they’ve learned along their journeys.
SEE WHAT THE COMMUNITY HAS BEEN UP TO
Explore images and videos from recent lupus events.
LEARN FROM THE ADVICE OF OTHERS
Systemic lupus erythematosus (SLE or lupus) can affect everyone differently. Read the advice of others to learn what helped them in their experience with this autoimmune disease in which the body’s immune system attacks its own tissues and organs.
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Advocate for yourself, talk about how you are feeling, talk about what’s working and what’s not working with your rheumatologist, and be sure to remember the things that are important to you and how you need to get back to that again.
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The biggest advice I would give is to not lose hope. Keep pushing! And always be honest with your doctor.
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My advice to other Lupus Warriors would be to not give up and to be your own advocate. Make sure you do your research and get involved with other lupus patients. Joining lupus groups online was helpful for me because everyone shared what was working for them, their experience with different treatments, and what helps them on the day to day. It’s nice to be able to relate to other people and to share those moments with those who know exactly what you’re going through and exactly how you’re feeling!
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I encourage others with SLE (lupus) to educate themselves and discover all of the potential treatment options that are out there. If my doctor hadn’t been looking for other options…I wouldn’t be where I’m at today.
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Sometimes, with lupus, things will get worse before they get better. You have to stay hopeful. Join support groups. Talk to people. Don’t be shy. You have more resources than you think!
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I’m a lupus content creator, because finding positivity during challenging times is my goal. And knowing I’ve made a difference for at least one person makes it all worthwhile.
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Celebrate your small wins. Keep track daily in a journal of things you did accomplish or enjoy, even if it was taking a shower, or walking your dog. These are “wins,” especially when we are in a flare, and we need to celebrate ourselves.
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My most significant advice to anyone newly diagnosed is to take the time to learn how your body reacts to different situations. Listening to your body is vital for your health. When living with lupus, you are your biggest advocate.
“
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An educated patient is an empowered patient. Learn how lupus affects you, keep a symptom diary, read about the medications you’re taking and bring that information to your doctor, so you can work together to make the best medical decision.
“
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I’ve learned a lot as a chronic illness advocate and lupus warrior. Advocating for myself, especially when talking about my health with my doctor, is vital. Living with an invisible illness is a struggle because we might look perfectly okay on the outside, but our bodies feel different. Self advocacy is needed so that your voice will be heard by your healthcare providers.
“
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As a fellow warrior living with lupus and helping to raise awareness, I encourage you to never give up because there is always someone who cares and is rooting for you. You might not see it but you will eventually. Someone cares about you. As for me, my kids, husband, and family remained my biggest support in a lot of obstacles and they are still here today. The ones that are not meant to be there will leave. So do not let that discourage you, for at the end of the tunnel there is always light and that is the people that care about you.
“
“
I am a wellness content creator and am passionate about sharing my experience with lupus. Advocating for this community is my biggest passion, and I want people with lupus to know that they’re not alone. There are many of us who battle with lupus every day! I also attend annual lupus walks to help raise awareness, and I go to lupus support groups!
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Advocate for yourself, talk about how you are feeling, talk about what’s working and what’s not working with your rheumatologist, and be sure to remember the things that are important to you and how you need to get back to that again.
“
“
The biggest advice I would give is to not lose hope. Keep pushing! And always be honest with your doctor.
“
“
My advice to other Lupus Warriors would be to not give up and to be your own advocate. Make sure you do your research and get involved with other lupus patients. Joining lupus groups online was helpful for me because everyone shared what was working for them, their experience with different treatments, and what helps them on the day to day. It’s nice to be able to relate to other people and to share those moments with those who know exactly what you’re going through and exactly how you’re feeling!
“
“
I encourage others with SLE (lupus) to educate themselves and discover all of the potential treatment options that are out there. If my doctor hadn’t been looking for other options…I wouldn’t be where I’m at today.
“
“
Sometimes, with lupus, things will get worse before they get better. You have to stay hopeful. Join support groups. Talk to people. Don’t be shy. You have more resources than you think!
“
“
I’m a lupus content creator, because finding positivity during challenging times is my goal. And knowing I’ve made a difference for at least one person makes it all worthwhile.
“
“
Celebrate your small wins. Keep track daily in a journal of things you did accomplish or enjoy, even if it was taking a shower, or walking your dog. These are “wins,” especially when we are in a flare, and we need to celebrate ourselves.
“
“
My most significant advice to anyone newly diagnosed is to take the time to learn how your body reacts to different situations. Listening to your body is vital for your health. When living with lupus, you are your biggest advocate.
“
“
An educated patient is an empowered patient. Learn how lupus affects you, keep a symptom diary, read about the medications you’re taking and bring that information to your doctor, so you can work together to make the best medical decision.
“
“
I’ve learned a lot as a chronic illness advocate and lupus warrior. Advocating for myself, especially when talking about my health with my doctor, is vital. Living with an invisible illness is a struggle because we might look perfectly okay on the outside, but our bodies feel different. Self advocacy is needed so that your voice will be heard by your healthcare providers.
“
“
As a fellow warrior living with lupus and helping to raise awareness, I encourage you to never give up because there is always someone who cares and is rooting for you. You might not see it but you will eventually. Someone cares about you. As for me, my kids, husband, and family remained my biggest support in a lot of obstacles and they are still here today. The ones that are not meant to be there will leave. So do not let that discourage you, for at the end of the tunnel there is always light and that is the people that care about you.
“
“
I am a wellness content creator and am passionate about sharing my experience with lupus. Advocating for this community is my biggest passion, and I want people with lupus to know that they’re not alone. There are many of us who battle with lupus every day! I also attend annual lupus walks to help raise awareness, and I go to lupus support groups!
“
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SNAP AND SHARE YOUR SUPPORT
Show off your SAPHNELO pride and stand with the Lupus Warrior community! Use the exclusive SAPHNELO Snapchat filter to spread awareness and share your support in style.
HEAR WHAT LUPUS WARRIORS HAVE TO SAY ABOUT SAPHNELO!
SAPHNELO is an FDA-approved treatment for adults with moderate to severe SLE or lupus who are on other lupus medicines. Learn about the experiences of real patients after SAPHNELO was added to their treatment plan. Individual experiences may vary.
LIVING WITH LUPUS
Learn to recognize uncontrolled lupus and when it may be time to talk to your doctor about adjusting your treatment plan.
LIVING WITH LUPUSSUPPORT RESOURCES
Find helpful information and resources about SAPHNELO in one place.
SUPPORT RESOURCESTHANKS FOR REGISTERING!
THANKS FOR REGISTERING!
By completing this registration, I confirm that I am at least 18 years old, agree to receive information about SAPHNELO, and may receive information about other immunology medicines and services related to my condition which includes, but is not limited to, educational and promotional materials, special offers and services and for market research purposes, which includes contacting me to participate in focus groups, surveys or interviews. This may include AstraZeneca or a third party working on AstraZeneca's behalf contacting me by telephone, e-mail and text message regarding AstraZeneca Support Programs that may be of interest to me. Information provided by AstraZeneca does not take the place of talking to your healthcare provider about your treatment or condition. If you no longer want to receive health-related materials, call 1-800-236-9933. Please visit www.azprivacynotice.com to review our Privacy Notice.
By providing your phone number, you are opting in to receive updates and support messages from SAPHNELO. Text STOP to opt out. Text HELP for help. Message frequency will vary. Message and data rates may apply. For more information, visit Privacy Notice or Terms & Conditions.
IMPORTANT SAFETY INFORMATION
- Do not use SAPHNELO if you are allergic to anifrolumab-fnia or to any of the ingredients
- Before you receive SAPHNELO, tell your healthcare provider about all of your medical conditions, including if you:
- Think you have an infection or have an infection that keeps coming back
- Are scheduled to receive a vaccination or if you think you may need a vaccination. You should not receive live vaccines during treatment with SAPHNELO
- Have or have had cancer
- Are receiving other biologic medicines or monoclonal antibodies
- Are pregnant or plan to become pregnant. It is not known if SAPHNELO will harm your unborn baby. Tell your healthcare provider if you are, might be, or plan to become pregnant during treatment with SAPHNELO
- Pregnancy exposure registry monitors pregnancy outcomes in women exposed to SAPHNELO. You can find out more information about the registry by calling AstraZeneca at 1-877-693-9268
- Are breastfeeding or plan to breastfeed. It is not known if SAPHNELO passes into your breast milk
Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. SAPHNELO may affect the way other medicines work, and other medicines may affect how SAPHNELO works.
SAPHNELO may cause serious side effects, including:
- Serious infections: SAPHNELO can lower the ability of your immune system to fight infections. You may be at a higher risk of developing respiratory infections and shingles (herpes zoster) during treatment with SAPHNELO. Infections could be serious, leading to hospitalization or death. Tell your healthcare provider right away if you have any of the following symptoms of an infection:
- fever, sweating, or chills
- muscle aches
- cough
- shortness of breath
- burning when urinating
- urinating more often
- diarrhea or stomach pain
- warm, red, or painful skin or sores on your body
- Allergic (hypersensitivity) reactions, including anaphylaxis: Serious allergic reactions can happen during or after SAPHNELO administration. Tell your healthcare provider or get emergency help right away if you have any of the following symptoms of a serious allergic reaction:
- swelling of your face, mouth, and tongue
- breathing problems
- fainting or dizziness
- feeling lightheaded (low blood pressure)
- Cancer: SAPHNELO may reduce the activity of your immune system. Medicines that affect the immune system may increase your risk of certain cancers
The most common side effects of SAPHNELO include:
- Upper respiratory infections
- Bronchitis
- Infusion reactions (when given intravenously)
- Shingles (herpes zoster)
- Cough
These are not all the possible side effects of SAPHNELO. Call your healthcare provider for medical advice about side effects.
SAPHNELO is a prescription medicine used to treat adults with moderate to severe systemic lupus erythematosus (SLE or lupus) who are receiving other lupus medicines.
It is not known if SAPHNELO is effective in patients with severe active lupus nephritis or severe active central nervous system lupus. It is not known if SAPHNELO is safe and effective in patients under 18 years of age.
Please see full Prescribing Information, including Patient Information.
You may report side effects related to AstraZeneca productsOpens new window.
IMPORTANT SAFETY INFORMATION
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IMPORTANT SAFETY INFORMATION
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